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Kiddushfest ~ Worlds of Whisky, Brew and Que

By Kiddushfest- Worlds of Whisky, Brew and Que (other events)

Wednesday, June 19 2019 5:30 PM 9:30 PM
 
TICKETS TICKETS
Sadly, this date has passed so tickets are no longer available.
Wednesday, June 19 2019 5:30 PM 9:30 PM
ticket type tickets fees qty
$
VIP
$250.00
+
$6.00
$250.00
$6.00
N/A
More Info

VIP Doors open at 5:30
Includes Swag Bag - Kiddush Club Survival Kit
NEAT Glassware & Wandering Que Charcuterie
1 Raffle Ticket (400 total) for Rare Whiskey Raffle (3 Bottles $500-4500) to benefit Save Josh and Benny Foundation
1 Hour Hand Selected Passing Menu by Ari White of Gemstone Catering and The Wandering Que
Getting to get there before everybody else...priceless

1 Hour Pregame S
Available only for ages 21 and over

$
Kiddush Clubber
$136.00
+
$3.72
$136.00
$3.72
N/A
More Info

General Admin Tickets Doors open at 6:30pm
Includes one NEAT Tasting Glass
Available only for ages 21 and over

$
Raffle to benefit Save Benny and Josh Foundation
$25.00
+
$1.50
$25.00
$1.50
N/A
More Info

A number of bottles and a choice of Rare Whisky lots will be raffled off to benefit Save Benny and Josh. Including:
Macallan 30 Fine Oak
Balvenie 25 Triple Cask
Tomintoul 31
Hazelburn 1st Edition
Bruickladdich 15 ch d'yquem finish
Four Roses Limited Ed. 2013
Woodford Reserve Four Grain 2nd ed
Old Malt Cask Port Ellen 19yr
1982 Bruichladdich 1993, From the website:


We need your help to save our boys, Ben (17 months old) and Josh (4 months old) Landsman, who were recently diagnosed with a devastating, fatal disease called Canavan Disease.

Canavan Disease is a progressive brain disorder caused by a genetic mutation that affects little children. Children with Canavan Disease are unable to sit, stand, walk or talk. As degeneration progresses, many children will lose the ability to swallow, develop seizures, and become blind. While other 17 month olds are typically toddling around, beginning to speak, and some are even climbing, Benny cannot crawl, sit up on his own, roll over, hold his head up, or speak. Josh is starting to show signs of affliction with Canavan.

There is currently no cure for Canavan Disease and most afflicted children develop fatal complications by the time they’re 10 years old.

Waiting for everything you love to be taken away is not a life. So we researched and reached out to scientists, doctors, researchers, specialists, and families across the country and across the world and found out that more can be done!

* Experimental treatments in off-label uses for drugs can slow down the degeneration.
* Therapeutic equipment can change day-to-day living.
* Major breakthroughs in gene therapy are happening and can change the way the world views and treats neurological diseases.

As with any progressive disease, early intervention is critical. We’ve already seen some improvements in Benny since starting medication a few weeks ago and ramping up his daily schedule of therapies that include physical, occupational, feeding, and developmental therapies. We also found well-respected researchers who have developed a gene therapy customized to treat Canavan Disease. We are desperate to fast-track funding to bring this gene therapy out of the lab and into the hands of patients like Benny and Josh. We are hopeful that Benny and Josh will be among the first to benefit and we need your help to make it happen fast.

Our #1 fundraising goal is $1.2 million to help bring this treatment out of the lab and available for children like Benny and Josh who have Canavan Disease. When we launched the #SaveBennyAndJosh campaign 3 days before this update, we didn’t know if this number was achievable. We now believe it is. We’ve been amazed and shocked by how quickly our campaign is growing. We’ve also received tons of messages from you guys and want to let you know that your support, empathy, and encouragement has given us so much hope for a brighter future. Words simply fail to express how incredibly grateful we are.

In addition to all your amazing support through this GoFundMe page, people have learned about our story and reached out to the researchers to see what they can do to help. We do not yet have information to share about offline contributions since we launched this campaign, but as soon as we do, we will update you.

Finally, we received a bunch of notes and requests from people who want to know how they can help Benny and Josh more directly. Our #1 goal is to get the research funded. But to answer those who were asking, we have decided that if we are fortunate enough to help the researchers raise the $1.2 million they need for the patient gene therapy, donations in excess of what the researchers need will go to expenses related to Benny and Josh's care, medical needs, and special needs equipment.

We’ve been so moved and humbled by the outpouring of love and support. Please continue reaching out to your friends, networks, and communities to get the word out. Any showing of support -- whether financial or otherwise -- means the world to us.

Benny and Josh are eternally grateful for your support!"

$
Kiddush Club 9 Pack Plus 1 Freebie
$1224.00
+
$10.00
$1224.00
$10.00
N/A
More Info

Buy 9 Kiddush Clubber Tickets and get the 10th one on us!
That's a $136 gift for the year's biggest Kosher Whisky Festival.

$
VIP Ticket 9 Pack with 1 Freebie
$2250.00
+
$10.00
$2250.00
$10.00
N/A
More Info

Buy 9 VIP tickets and get the 10th on us!

Please contact Kiddushfest- Worlds of Whisky, Brew and Que to request a refund.
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